The Shape of Ideas
Katharine Hepburn and Jimmy Stewart in The Philadelphia Story
Beautiful illustration + type from Creative Mints. Dribbble shot here.
my dad died from ALS when i was 3 years old. he was 36. my mom was 33. that was 30 years ago. now i’m the same age my mom was when my dad died. and there is still no cure for ALS.
this is what happens when you have ALS: your muscles slowly stop working, one part at a time. for my dad, first he couldn’t use one of his hands. then his arm. then the other arm. then he couldn’t walk. then he couldn’t stand up. then he couldn’t talk. then he couldn’t swallow. then he couldn’t breathe. then he was dead.
this all took about two years. he was diagnosed when i was about one year old. the only memories i have about my dad are of an inert body in a wheelchair or lying in a bed with a bunch of tubes stuck into it. as i was learning to talk, he was losing the ability to speak. as i was learning to walk, he stopped being able to move. my mom often had to choose between who she was going to help go to the bathroom at any given moment: her husband or her toddler.
after my dad died, my mom took over the philadelphia chapter of the ALS association. it consisted of a shoebox full of notecards with names on it. now it is a multi-million dollar organization with a large staff. she is still in charge. my mom is one of the most amazing people on the planet, basically.
these past couple weeks have been mind-boggling. i have openly wept watching so many of these videos. i still don’t completely get how all of this has happened, but now we live in a world in which lil wayne and taylor swift and oprah and justin timberlake and weird al and bill gates talk about ALS. my mom just emailed me this sentence: “lebron james ice bucket challenge.” i mean, IS THIS REAL LIFE?! i just keep saying over and over: holy shit. holy shit. holy shit.
so far, it has raised over 10 million dollars… and counting. my mom has spent every single day of her life for the past three decades trying to get this kind of attention and funds for this disease.
i don’t care if it’s a stupid gimmick. i don’t care if people are just doing this because it’s trendy or because they want pats on the back. i don’t care if it’s the new harlem shake. i don’t care if for the rest of my life, when i talk about ALS, i have to say “you know, the ice bucket disease.”
please, everybody, please keep pouring buckets of ice over your heads. please keep donating money. please keep talking about this.
my mom’s chapter:
p.s. the only reason i haven’t done my own ice bucket challenge yet is because i wanted to do it with my mom. we’re seeing each other next week, so it will happen then, i promise.
Think about this next time you think it’s just a stupid gimick
I had a good friend who died of ALS about ten years ago. It is one of the worst ways to die. No matter how much the ice bucket challenge seems like just another fad or meme, it actually has raised money and awareness for this debilitating disease. Keep the buckets pouring.
DOING THE LINDY
—- Leon James and Willa Mae Ricker demonstrate the Lindy Hop, 1942.
Mask tests for The Silence of the Lambs.
1956- Gordon Parks documented the everyday lives of an extended black family living in rural Alabama under Jim Crow segregation for Life magazine’s photo-essay “The Restraints: Open and Hidden.” (via)
My friends’ roomate who’s from Bhutan taught them to say ‘fuck you’ in his language and it sounds like ‘cheddar’
"Dad was, is and always will be one of the kindest, most generous, gentlest souls I’ve ever known, and while there are few things I know for certain right now, one of them is that not just my world, but the entire world is forever a little darker, less colorful and less full of laughter in his absence. We’ll just have to work twice as hard to fill it back up again." - Zelda Williams